"This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and the use of information by family members and other third parties. Drawing on extensive ethnographic research with families affected by Huntington's Disease and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services."--BOOK JACKET.