Narrating the new predictive genetics : ethics, ethnography, and science

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Title:

Author:

Konrad, Monica.

ISBN:

9780521540667

9780521833141

Personal Author:

Konrad, Monica.

Publication Information:

Cambridge ; New York : Cambridge University Press, 2005.

Physical Description:

xii, 203 p.

Series:

Cambridge studies in society and the life sciences

Series Title:

Cambridge studies in society and the life sciences

Contents:

1. Thinking futures -- 2. Approaching translocations -- 3. Foretelling foreknowledge -- 4. Tracing genealogies of non-disclosure -- 5. Reproducing exclusion -- 6. Relinquishing exclusion -- 7. Concluding remarks.

Abstract:

"This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and the use of information by family members and other third parties. Drawing on extensive ethnographic research with families affected by Huntington's Disease and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services."--BOOK JACKET.

Subject Term:

Human chromosome abnormalities -- Diagnosis -- Social aspects.

Human chromosome abnormalities -- Diagnosis -- Moral and ethical aspects.

Electronic Access:

Table of contents http://www.loc.gov/catdir/toc/cam051/2004056825.html
Publisher description http://www.loc.gov/catdir/description/cam051/2004056825.html

Copies:

Available:*

Library	Material Type	Item Barcode	Shelf Number	Copy	Status
Searching... 1:IIEMSA	1:GEN-BOOK	33168015779578	616.042 K82N 2005	1	Searching... Unknown

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Summary

This book explores the way changes in technology have altered the relationship between ethics and medicine. For some inherited diseases, new genetic testing technologies may provide much more accurate diagnostic and predictive information which raises important questions about consent, confidentiality and use of the information by family members and other third parties. What are the implications of this knowledge for individuals and their families? And for society more widely? How should this new information be used? How do people deal with the choices that new knowledge and technologies offer? Drawing on extensive ethnographic research with families affected by Huntington's Disease, and using perspectives from medical and cultural anthropology, the author explores the huge disparity between the experience of living with the results of genetic testing and the knowledge and expertise which are drawn on to develop policy and clinical services.